Full Circle

Posted by on Feb 12, 2016 in Down Syndrome, fatherhood, Leukemia | No Comments
Full Circle

2/11/2016, 9:18 am. Newest Voicemail read: Unknown  I hit “play” followed by “speaker” on my iphone screen. The voice on the other end seemed to be in a panic state. “Hi John, my name is Steve. I’m sorry to bother you, I got your number from a friend of a friend. Listen, I don’t really […]

Say Something!

Posted by on Sep 28, 2015 in Down Syndrome | 8 Comments
Say Something!

Well, it happened. I’m not proud. Jack stood in the center of his room with tears rolling down his face. We just finished the 15-minute nightly battle of me injecting chemo down his throat followed by another painful teeth brushing war. The side effects of chemo have nearly destroyed what’s left of his baby teeth. […]

A day without cancer…

Posted by on May 31, 2015 in Down Syndrome, Leukemia | One Comment
A day without cancer…

I’ve always thought THE DAY without cancer was on January 13, 2016- the day after Jack’s  final treatment. I was wrong. For a few hours today, we were cancer free…..      As we boarded my parents houseboat, Jack and Charlie cheers of joy echoed from Lake Berryessa’s shoreline.  Before I could pull the bathing suits from the bag, both boys stood naked […]

Welcome to IEP Land

Posted by on May 28, 2015 in Down Syndrome, Special Needs | 2 Comments
Welcome to IEP Land

I always knew my eldest son, Jack was a little bit different than other kids, but today was an eye-opener. Today, Angi and I graduated from toddler land to “holy shit, our son is about to start kindergarten” land. Like many special needs parents, this land is full of specialists, teachers, therapists, principals, psychologists, and god […]

I Wish I’d Said

Posted by on May 20, 2015 in Down Syndrome, Special Needs | No Comments
I Wish I’d Said

Last week I met up with one of my single friends. He’s the world traveler type. He’s the guy who wanders the earth doing odd jobs to fuel his crazy adventures while putting whatever beer he can find to his lips. He’s the guy who exudes excitement and adrenaline. He’s the guy every guy wants to […]

Grateful

Posted by on May 5, 2015 in Down Syndrome, Special Needs | No Comments
Grateful

I looked at my cell phone; it was 9:43 A.M. My wife (Angi) and I were impatiently waiting in the recovery room to hear the status of our first born son. We knew something wasn’t quite right, as he was born a few hours earlier via emergency C-section, and now lay in the NICU under […]

A Tuesday I’ll Never Forget

Posted by on May 3, 2015 in Down Syndrome, Leukemia, Special Needs | No Comments
A Tuesday I’ll Never Forget

I received a call at the office one Tuesday morning from what seemed like an elderly man. “Kunst Painting. How can I help you?” I said. “I’m looking for Bob. Is he around? I need an estimate today… not tomorrow or the end of the week. Today!” he spouted impatiently. I went through my typical probing […]