Full Circle

Posted by on Feb 12, 2016 in Down Syndrome, fatherhood, Leukemia | No Comments
Full Circle

2/11/2016, 9:18 am. Newest Voicemail read: Unknown  I hit “play” followed by “speaker” on my iphone screen. The voice on the other end seemed to be in a panic state. “Hi John, my name is Steve. I’m sorry to bother you, I got your number from a friend of a friend. Listen, I don’t really […]

11/12/13

Posted by on Nov 13, 2015 in fatherhood, Leukemia | 2 Comments
11/12/13

REALLY, it’s already been two years? or is it- REALLY, it’s only been two years? 11/12/13 is a date I will never forget. The day Jack was officially diagnosed with Acute Lymphoblastic Leukemia. It’s weird how certain memories can seem so distant, almost like they never really happened. Then two years go by and you vividly […]

You won. A tribute to James Forni

Posted by on Jul 1, 2015 in fatherhood, Leukemia | 17 Comments
You won. A tribute to James Forni

“Jack, it’s time to take your medicine.” It was Sunday, June 28, 2015, 8:36PM- exactly two hours since his last bite of food. Two hours is the required amount of time to pass before he can consume his daily dose of chemo. “Jack! Please sit down,” I yelled. Administering Jack’s medication is no easy feat. […]

A day without cancer…

Posted by on May 31, 2015 in Down Syndrome, Leukemia | One Comment
A day without cancer…

I’ve always thought THE DAY without cancer was on January 13, 2016- the day after Jack’s  final treatment. I was wrong. For a few hours today, we were cancer free…..      As we boarded my parents houseboat, Jack and Charlie cheers of joy echoed from Lake Berryessa’s shoreline.  Before I could pull the bathing suits from the bag, both boys stood naked […]

To All the Parents of Sick Children, I See You

Posted by on May 21, 2015 in Leukemia | No Comments
To All the Parents of Sick Children, I See You

To the parents in the waiting room, Everything about you screams “worried.” You sit there with so many unanswered questions; you’re not sure if keeping busy via mobile device or pacing the halls is the right thing to do. The lump in your throat seems to grow with every second. Swallowing, blinking, breathing aren’t coming […]

A Tuesday I’ll Never Forget

Posted by on May 3, 2015 in Down Syndrome, Leukemia, Special Needs | No Comments
A Tuesday I’ll Never Forget

I received a call at the office one Tuesday morning from what seemed like an elderly man. “Kunst Painting. How can I help you?” I said. “I’m looking for Bob. Is he around? I need an estimate today… not tomorrow or the end of the week. Today!” he spouted impatiently. I went through my typical probing […]